To my precious lil moose,
As I prepare for your 2nd birthday party tomorrow I am amazed! WOW where has the time gone? I can't believe that its been two years since God has brought you in our lives. You are such a miracle and I will always give God the praise and glory!
As I wander down memory road I can't believe the path we have traveled. I wouldn't want any other baby but you! We are so blessed to have you in our lives. Here is some insight to the feelings, emotions, and all else along the way..
When we got our diagnosis that you were going to have a cleft lip and cleft palate I was scared to death. I wasn't scared because I didn't love you.. it was the complete opposite! I loved you so much. I couldn't imagine what you life would be like... how long could I carry you, how long would you be in the hospital, how would I feed you, how many surgeries would you face, how would we handle people being cruel. I had so many questions and not very many answers.
Its amazing what God can do.... He gave us a baby for us to love and take care of but I had no idea that you would teach me so much about love! You are my hero and i will love you forever.
When we brought you home, I had no idea about the challenges we would face but I knew that as your mommy I would be there every step of the way. I prayed that God would give me the strength to do everything I needed to take care of you! I also prayed that God would place people in our path at the right time just when we needed them. Once again God never fails us! He gave us such a great care team at childrens hospital. Dr. Jaing is someone we will forever hold near and dear to our hearts. We felt that you wasn't just a patient to them.. they truely cared about you and your family! We saw them atleast once a week for the first six months of you life... we couldn't imagine our life without them....
Then we have Dr. Mitchell--- He is a Godsend himself.. What a special doctor.
We tried very early to get involved in the birth to three program.We realized that its all in Gods timing. I can't say enough good things about all the special people we have met. Its amazing to know there are people out there that love you like I do. We are so grateful for all they have done to help you make such great progress! I have to tell you how special Stacy is! Its amazing how special she is to you. You have actually spent time crying for her when you were sick... Im so glad put her in our lives! She is an amazing and wonderful person!
We are so blessed to have such great friends! There are friends that have been with us every step of the journey! For that I am forever grateful! It is such a blessing to know from God that there is someone there to share each milestone with.
You are so rotten. You figured out a long time ago how to wrap gma around your lil finger. We are so fortunate to have all the grandparents in our lives that we do. Grandma and mama and papa are always so eager to help take care of you and your brother and sisters. We sure couldn't make it without them!
For all your sisters. They have been so brave on this journey. Learning along the way about true love and making sacrifices. Loving you right from the start! always being there to give a helping hand. And especially here recently, to help teach you to be rotten!
I love watching you and Elijah play. Its so cute. What he doesn't think of, you do and vice versa! You two are true partners in crime!
You look so much like your daddy! You even act like him sometimes! I am so proud of the man that he is. He works so hard to provide for us! He loves us all so much!
My prayer for you is that you continue to do as well as you are. You have met milestones taht completely amaze me. You are saying so many words now. Its crazy but you say new words everyday! You have so many signs now that its time to start sentences. I'm having a hard time keeping up with all the signs now.
More than anything I want you to know how much we love you and how blessed we are to have you in our lives! Thank you for being the amazing little boy that God created you to be!
Love forever and always.... mommy
Saturday, October 23, 2010
Tuesday, October 19, 2010
Isaiah's Birthday
Can't believe that its time to plan my baby's birthday. WOW! I can't believe its been two years already. He still continues to amaze me everyday! What a true miracle from God he is!
I LOVE YOU MOOSE!!! You are my inspiration!
love mommy
I LOVE YOU MOOSE!!! You are my inspiration!
love mommy
Friday, October 8, 2010
My baby is perfect!
I know that everyone already knows it but I just wanted to remind everyone! I can't believe my baby is almost 2 years old. Where has the time gone? It seems like yesterday that we brought him home. Yet here we are almost 2 years and 3 surgeries later. WOW what a miracle we have. We are so blessed.
About 4 months ago he was saying 4-6 words. That was it. I was nervous and probably a little discouraged. Since that time we started a program with birth to three called hippotherapy. WHAT AN AMAZING PROGRAM. Once a week he rides a horse and works with therapists molly and stacy. His speech has by far skyrocketed. I dont know if there are even words to describe his vocabulary now. WOW. I bet he says 50-75 words. Its crazy! Today at Audreys urging he said "loser". I think his favorite word is "meanie". I am very happy to report that finally 22 months after birth my baby finally said it... he said "dad"!
His sign vocabulary is probably somewhere between 30-40 words. It crazy how quick he picks it up.
His sleeping has improved as well. We started using a weighted blanket. He usually only gets up 1-2 times a night. Big improvement from 4-6 times a night!
AND of course he wouldn't be a boy if he wasn't ornrey! Boy he is just downright wild! crazy as can be, but you know what... I wouldn't have hime any other way! I love every little inch of him! To me he is JUST PERFECT!!!!
I love you Moose!
About 4 months ago he was saying 4-6 words. That was it. I was nervous and probably a little discouraged. Since that time we started a program with birth to three called hippotherapy. WHAT AN AMAZING PROGRAM. Once a week he rides a horse and works with therapists molly and stacy. His speech has by far skyrocketed. I dont know if there are even words to describe his vocabulary now. WOW. I bet he says 50-75 words. Its crazy! Today at Audreys urging he said "loser". I think his favorite word is "meanie". I am very happy to report that finally 22 months after birth my baby finally said it... he said "dad"!
His sign vocabulary is probably somewhere between 30-40 words. It crazy how quick he picks it up.
His sleeping has improved as well. We started using a weighted blanket. He usually only gets up 1-2 times a night. Big improvement from 4-6 times a night!
AND of course he wouldn't be a boy if he wasn't ornrey! Boy he is just downright wild! crazy as can be, but you know what... I wouldn't have hime any other way! I love every little inch of him! To me he is JUST PERFECT!!!!
I love you Moose!
Friday, October 1, 2010
Isaiah and Hippotherapy
Who would have thought putting him on a horse would have been just what he needed... Along with God and the most amazing teachers ever!
Wednesday, August 4, 2010
Its been a while...
Just wanted to update everyone n Isaiah's progress.
He is growing in leaps in bounds. Everyday he does something that truely amazes us. What a miracle God has given us!
Isaiah had the ABR test done last week. They had to replace his right tube as well. It was blocked and not functioning. He seems to be feeling better so hopefully its from the relief! We are currently waiting for the test results on a hard written copy. I know they said the results were fine but I want it in black in white.
He is learning to blow noise makers... Part of me screams YAH! he can do it but wow thats a lot of noise for such a lilttle boy! He learned to say move and moo. He is such a smart little boy!
While we were on vacation he came down with hand, foot, and mouth disease. He recovered after about 4 days but his feet look awful now. They are peeling and he complains and whines with them. Hopefully they heal soon.
Well, I know he is progressing in other areas too but honestly my brain hurts to much to think about it...
We are forever grateful to our friends and family who have walked along beside of us during this journey.... We love you all!
Amy
He is growing in leaps in bounds. Everyday he does something that truely amazes us. What a miracle God has given us!
Isaiah had the ABR test done last week. They had to replace his right tube as well. It was blocked and not functioning. He seems to be feeling better so hopefully its from the relief! We are currently waiting for the test results on a hard written copy. I know they said the results were fine but I want it in black in white.
He is learning to blow noise makers... Part of me screams YAH! he can do it but wow thats a lot of noise for such a lilttle boy! He learned to say move and moo. He is such a smart little boy!
While we were on vacation he came down with hand, foot, and mouth disease. He recovered after about 4 days but his feet look awful now. They are peeling and he complains and whines with them. Hopefully they heal soon.
Well, I know he is progressing in other areas too but honestly my brain hurts to much to think about it...
We are forever grateful to our friends and family who have walked along beside of us during this journey.... We love you all!
Amy
Wednesday, June 9, 2010
Another update
lots of things have been happening with Isaiah. wanted to catch everyone up to speed.
Isaiah had his allergy testing done last week. On a good note is was all clear. He tested negative for any food allergies. We are grateful for that. but on the other hand thats one more thing to cross of the list that cant be the issue.
We have started the skihi program. It is a program that is done thru the wv school for the deaf and blind in romney. They will come to the house every other week. We will working on sounds and continue signing. When she comes next week she will be doing and language screening on him. I am anxious to see where he stands.
As for signing, Isaiah is doing wonderful. I am completely amazed that he picks up so quickly. I think his signing vocabulary is between 30-35 words. That is amazing. And what he learns -- we learn! He has taught us so much in his little life! Praise God for his miracles!
Today when Ms. Stacy was here we discussed some issues with him. She believes there is some sensory delays for him. We are in the process of getting an occupational therapist to do an evaluation. We started something new called the Wilbarger Brushing Protocol. It involves brushing isaiah all over his body every two hours for two weeks. also joint compressions were added. Also some other exercises too. Alot to do but if it helps my baby one ounce it will all be worth it!
I am in t he process of scheduling another appt with the ENT. I am really pushing for them to do the ABR test. I believe there is a small hearing loss. It seems everyone is on board but the ENTs. They are the ones we need the most. I believe that God placed the right audiologist in our path this time. Please pray for the ENT to agree to do this test. It is very important. It will give us an idea of which way to proceed with treatment.
In ending, although I knew that my baby would have issues to faces this is hard. My heart breaks for him but at the same time I am forever grateful that he is as healthy as he is. I just want to know what we are faced with so that we can get him the best tratment possible.
Please pray for Dave as well. going in tomorrow for a stress test. Been carrying a lot of fluid and the wanna make sure taht he dont have another blockage.
Amy
Isaiah had his allergy testing done last week. On a good note is was all clear. He tested negative for any food allergies. We are grateful for that. but on the other hand thats one more thing to cross of the list that cant be the issue.
We have started the skihi program. It is a program that is done thru the wv school for the deaf and blind in romney. They will come to the house every other week. We will working on sounds and continue signing. When she comes next week she will be doing and language screening on him. I am anxious to see where he stands.
As for signing, Isaiah is doing wonderful. I am completely amazed that he picks up so quickly. I think his signing vocabulary is between 30-35 words. That is amazing. And what he learns -- we learn! He has taught us so much in his little life! Praise God for his miracles!
Today when Ms. Stacy was here we discussed some issues with him. She believes there is some sensory delays for him. We are in the process of getting an occupational therapist to do an evaluation. We started something new called the Wilbarger Brushing Protocol. It involves brushing isaiah all over his body every two hours for two weeks. also joint compressions were added. Also some other exercises too. Alot to do but if it helps my baby one ounce it will all be worth it!
I am in t he process of scheduling another appt with the ENT. I am really pushing for them to do the ABR test. I believe there is a small hearing loss. It seems everyone is on board but the ENTs. They are the ones we need the most. I believe that God placed the right audiologist in our path this time. Please pray for the ENT to agree to do this test. It is very important. It will give us an idea of which way to proceed with treatment.
In ending, although I knew that my baby would have issues to faces this is hard. My heart breaks for him but at the same time I am forever grateful that he is as healthy as he is. I just want to know what we are faced with so that we can get him the best tratment possible.
Please pray for Dave as well. going in tomorrow for a stress test. Been carrying a lot of fluid and the wanna make sure taht he dont have another blockage.
Amy
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