We had another follow up today! We saw the surgeon as well. He believes that it is the hematomia. He said that it is common for that to happen during difficult births. He said it was a skull fracture that the bone never broke completely in to. Blood collected under neath. It will go away in 4-6 months. We all noticed that it did go down since last week. TO GOD BE THE GLORY!!! We are claiming a complete healing!
As for growth...
He was 21 1/4 inches long when he was born. Now at 4 weeks and 2 days he is 23 inches long. He gained 10 ozs since last Thursday. He now weighs 10lbs and 7 oz. I can't believe how much he gains each week. Same scale, same nurse, no clothes! He goes to the peditrician on Monday. We will see what he says about his growth!
It was snowing last night so we went ahead and came up here last night. The girls didn't know it til last night. As an early Christmas present we bought them concert tickets to see the Cheetah Girls. I bought them each a Cheetah Girls purse and put the ticket in each. WOW they were so excited! Dave just called and said they are on their way back to the hotel. He said the girls had blast! Isaiah and I hung out at the hotel and took a nap, boy was it great!
We are heading home in the morning to get Devon and Elijah. We have dinner reservations at 3pm at the Hilton in Bridgeport. Dinner with just the nine of us. That will be nice.
Let me take a moment to say HAPPY THANKSGIVING EVERYONE!!! We have truely been blessed this year. God has blessed us with our health, our family, and of course our miracle baby!
Let us never forget to give God the praise for all our blessings!
With Love from our family to yours,
Amy
Wednesday, November 26, 2008
Friday, November 21, 2008
Update from Pittsburgh
We had a good visit in Pittsburgh yesterday. He gained 9 more ozs in oly 8 days. That puts him at a whopping 9 lbs 13oz. I will tell you I think he is ready for a steak. I gave him 5 oz at church last night and he got very upset because he wanted more! It had only been a little over 2 1/2 hours since he had eaten before.
They deceided that the would have the surgeon check his head next week. Along with his peditrician they think it is a something hematomia (or however you spell it). They think it happen during the birth process. They said it may take months but it should go away eventually. The surgeon wants to see him next week just to make sure.
He has been spitting up a good bit this week. They seem to think he may be starting to have reflux issues. He has had some fussy issues and arching his back some. They say those are all signs of reflux. Most babies with cleft have it to some degree.
They also said that the NAM device looks good. His mouth is adjusting to it well. It looks like if all continues to go well then his first surgery will be sometime around five months of age. We will know an exact date Jan. 12.
As for the rest of us, the girls are passing the bug back and forth. Elijah has an ear infection. Talk about little sleep in this house.
I will be getting things ready to do a family portrait for Christmas.
Well Elijah is in need of something so I gotta run.
Amy
They deceided that the would have the surgeon check his head next week. Along with his peditrician they think it is a something hematomia (or however you spell it). They think it happen during the birth process. They said it may take months but it should go away eventually. The surgeon wants to see him next week just to make sure.
He has been spitting up a good bit this week. They seem to think he may be starting to have reflux issues. He has had some fussy issues and arching his back some. They say those are all signs of reflux. Most babies with cleft have it to some degree.
They also said that the NAM device looks good. His mouth is adjusting to it well. It looks like if all continues to go well then his first surgery will be sometime around five months of age. We will know an exact date Jan. 12.
As for the rest of us, the girls are passing the bug back and forth. Elijah has an ear infection. Talk about little sleep in this house.
I will be getting things ready to do a family portrait for Christmas.
Well Elijah is in need of something so I gotta run.
Amy
Wednesday, November 19, 2008
another visit to pittsburgh tomorrow
We have another visit to pittsburgh in the morning. Tomorrow they will deceide on the scan of the knot on his head. They may choose to do it tomorrow. Say a little prayer for us.
He has been spitting up a good bit since yesterday. I don't know if it is a bug or if it is just normal. We are battling the bug around here. Dana came home yesterday with a fever. Kearstyn got the stomach ache last night. Devon came home from school todaywith a stomach ache. Elijah has an ear infection. Thank goodness no one is throwing up, knock on wood! I pray it stays that way. So I guess you can say that Audrey and MaKynzie are the healthy ones right now.
I will post an update tomorrow when I get home tomorrow night.
Amy
He has been spitting up a good bit since yesterday. I don't know if it is a bug or if it is just normal. We are battling the bug around here. Dana came home yesterday with a fever. Kearstyn got the stomach ache last night. Devon came home from school todaywith a stomach ache. Elijah has an ear infection. Thank goodness no one is throwing up, knock on wood! I pray it stays that way. So I guess you can say that Audrey and MaKynzie are the healthy ones right now.
I will post an update tomorrow when I get home tomorrow night.
Amy
Sunday, November 16, 2008
correction
ok so I am still trying to figure this whole site out. I guess I have to load the pictures in the opposite order. So they are in backwards of the post but I think everyone can figure them out..
It's 12:15 am and I am signing off to go to bed, good night!
It's 12:15 am and I am signing off to go to bed, good night!
Saturday, November 15, 2008
November 15
I can't beleive that it has been three yrs ago today since I had my Tubal Reversal surgery. Dave and I went to Chapel Hill, NC. Dr. Gary Berger andhis staff were great! We will always hold a special place in our hearts for them! God has truely called each one of them to do great work.
I wanted to include some pictures. One is of Isaiah in his "I'm a Berger Baby" onesie. I can't believe how snug it was on him. Elijah could wear his for months. Another picture is of his NAM device in place. It helps his cleft not to look so big but most of all it helps him to eat so much better. I can't believe how well he is doing. A couple other pictures are just of his random cuteness! He is so alert!
OH AND BY THE WAY IF YOU COULDN'T TELL I AM SO IN LOVE WITH HIM!!!!
and the last picture for the day....
I walked into the bedroom to fall into bed last night and this is the sight I saw. As any mom would say to herself, "this is a picture perfect moment" so off I ran to grab the camera.
You know you are completely exhausted when you don't care where the kids sleep as long as they JUST SLEEP!!!
Wednesday, November 12, 2008
Another follow up in Pittsburgh
its time for another follow up. It seems like just yesterday we were there but I guess it has been six days since we were there.
In six days Isaiah has gained 8 more ounces. He has now gained past his birth weight. He is 9 pounds and 4 ounces! Let me be the first to say he is a HORSE!!! We already had to get bigger bottles because he is eating 4-6 ounces every 2-3 hours. Yesterday he ate 18 ounces in less than 12 hours. We stopped in at the home health store to get the bigger bottles. Our dr wrote the prescription for 6 bottles. They informed us that they no longer bill the insurance for the bottles or pump. So we only got the bottles for now and will submit the claim ourself. For six bottles we shelled out $ 143.00. That was with the 10 % discount they gave us. Can you say OUCH!
Isaiah has had a knot on his head since shortly after birth. It is about the size of a fifty cent piece. I wasn't overly concerned at first but am becoming increasinly more so each day. They noticed it last week at the follow up. Then today I mentioned it again. They had two specialist peditricians look at it. They were a little concerned. They said it should be on top of the skull but his isn't They felt a bone around it. They said they will observe it next week and if no change then they will order a scan. So if you have a second this week then please say a prayer for the big guy!
We go back on the 20th.
I have some new pictures I need to post soon.
BTW, after each post you see a spot for comments. Please take a moment a leave a comment for us.
Have a good evening and will update again soon.
Amy
In six days Isaiah has gained 8 more ounces. He has now gained past his birth weight. He is 9 pounds and 4 ounces! Let me be the first to say he is a HORSE!!! We already had to get bigger bottles because he is eating 4-6 ounces every 2-3 hours. Yesterday he ate 18 ounces in less than 12 hours. We stopped in at the home health store to get the bigger bottles. Our dr wrote the prescription for 6 bottles. They informed us that they no longer bill the insurance for the bottles or pump. So we only got the bottles for now and will submit the claim ourself. For six bottles we shelled out $ 143.00. That was with the 10 % discount they gave us. Can you say OUCH!
Isaiah has had a knot on his head since shortly after birth. It is about the size of a fifty cent piece. I wasn't overly concerned at first but am becoming increasinly more so each day. They noticed it last week at the follow up. Then today I mentioned it again. They had two specialist peditricians look at it. They were a little concerned. They said it should be on top of the skull but his isn't They felt a bone around it. They said they will observe it next week and if no change then they will order a scan. So if you have a second this week then please say a prayer for the big guy!
We go back on the 20th.
I have some new pictures I need to post soon.
BTW, after each post you see a spot for comments. Please take a moment a leave a comment for us.
Have a good evening and will update again soon.
Amy
Friday, November 7, 2008
First follow up in Pittsburgh
We had a follow up appointment in Pittsburgh yesterday. It went well. They saw no problems with the NAM device except that I need to get it a little tighter when I change it next time. They weighed him and he gained 5 ounces since last friday. The NAM has sure helped with his eating. He is doing much better.
They have scheduled all appointments through middle of Janurary. We meet with the entire team middle of Janurary to start making plans for his first surgery.
Isaiah has his days and nights mixed up. Looking forward to him straighting those out.
Love Amy and Isaiah
They have scheduled all appointments through middle of Janurary. We meet with the entire team middle of Janurary to start making plans for his first surgery.
Isaiah has his days and nights mixed up. Looking forward to him straighting those out.
Love Amy and Isaiah
Wednesday, November 5, 2008
Monday, November 3, 2008
1 week old
Here are a couple pictures. These are coming home from the hospital.
We went to Pittsburgh on Friday and had the NAM device fitted and placed. He did really well with it. Everyone we met was very nice and we felt comfortable with our decision. I think our deceiding factor was this... If we did not have the NAM device placed then Isaiah was guarenteed a bone graft surgery between the age of 7 and 12. They would take a bone from his hip and place it in his gum line to connect them. If the device was used then there is a 60 percent chance that surgery won't be needed. We felt that we owed it to him to try to prevent any surgery that we could. I also know that we know the MASTER PHYSICIAN and are claiming the surgey won't be necessary!
Since the device was placed he has started eating better. It looks like a retainer. We will start making weekly trips to have it adjusted. This thursday is our first appointment.
In closing, please pray for me. I love my baby so much. My heart breaks for him. I know that God has a plan in all of this. I know that we were chosen to walk this path for a reason but as a mom it kills me inside to know that he will have to go through so much. We just got him out of the hospital last night with jaundice. I know that this is all fixable but when its your tiny baby going through it, it hurts. Please pray that God will give me strength. BUT MOST OF ALL PLEASE CONTINUE TO PRAY FOR A COMPLETE HEALING FOR MY PRECIOUS BABY, ISAIAH!
We went to Pittsburgh on Friday and had the NAM device fitted and placed. He did really well with it. Everyone we met was very nice and we felt comfortable with our decision. I think our deceiding factor was this... If we did not have the NAM device placed then Isaiah was guarenteed a bone graft surgery between the age of 7 and 12. They would take a bone from his hip and place it in his gum line to connect them. If the device was used then there is a 60 percent chance that surgery won't be needed. We felt that we owed it to him to try to prevent any surgery that we could. I also know that we know the MASTER PHYSICIAN and are claiming the surgey won't be necessary!
Since the device was placed he has started eating better. It looks like a retainer. We will start making weekly trips to have it adjusted. This thursday is our first appointment.
In closing, please pray for me. I love my baby so much. My heart breaks for him. I know that God has a plan in all of this. I know that we were chosen to walk this path for a reason but as a mom it kills me inside to know that he will have to go through so much. We just got him out of the hospital last night with jaundice. I know that this is all fixable but when its your tiny baby going through it, it hurts. Please pray that God will give me strength. BUT MOST OF ALL PLEASE CONTINUE TO PRAY FOR A COMPLETE HEALING FOR MY PRECIOUS BABY, ISAIAH!
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