We had an appointment in pittsburg today. Isaiah now weighs 11 lbs and 13 ozs. he is one big boy! They say he is the biggest baby they have treated as far as how fast hes grown and such.
I hope I can get all this stuff straight.
Isaiah has been having periods of difficulty in his breathing. Like when he is eating he will choke easily and gasp for air. Sometimes for no reason at all he will arch his back and throw his arms and loose his breathe for a few seconds. It is very scary but he never turns blue or anything and it never lasts more than 3-4 seconds then he regains his breath. Today they noticed that while weighing him he was struggling to breathe a little bit. They noticed it in his stomach and under his chest. They said it was something new that he has developed, meaning they have not observed this behavior before. They immediatly contacted ENT dr and we had an appointment within the hour. They checked him and found fluid on his left ear. That means there is now an ever greater possibility for tubes. More than likely they will put them in when they do his lip repair but if they take him to surgery for any other reason before that then they will do it then.
They also said that his lip was starting to come together a little bit. She was very pleased and said she would begin the work on his nose to prepare it for surgery soon. It will be a something added to the NAM and placed inside his noe to push it out. PRAISE GOD the NAM is working!!!
The ENT dr also was concerned about breathing so they chose to do an endoscopy on him today in the office. That was not fun at all. They ran a camera down his nose. They found that he has something called laryngmalisia (I know I didn't spell it right). In terms we can understand... He has a flappy voicebox. The flap has too much tissue so when he breathes it causes him some distress. The good news to that is this... It covers the airway so that when he is eating it does now allow fluid in his airway or lungs. So they put him on a second medicine for his reflux to help with this. The next step is thickening his fluid and worst case senerio would be surgery.
We had family pictures taken last night and it was by far the worse experience I have ever had with a photographer. I will post the pictures in a little while but I have to give Isaiah a bath and Elijah in bed first.
If I think of anything else I will add it in a while.
I changed a few settings on this site. Several people have said that they were not able to leave a post so please try again. If you are still unable the please send me an email. I just would like to see who all visits the site and what ya think. Thanks
amy.moore1@verizon.net
Amy
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