Its been a while...

Just wanted to update everyone n Isaiah's progress.
He is growing in leaps in bounds. Everyday he does something that truely amazes us. What a miracle God has given us!
Isaiah had the ABR test done last week. They had to replace his right tube as well. It was blocked and not functioning. He seems to be feeling better so hopefully its from the relief! We are currently waiting for the test results on a hard written copy. I know they said the results were fine but I want it in black in white.
He is learning to blow noise makers... Part of me screams YAH! he can do it but wow thats a lot of noise for such a lilttle boy! He learned to say move and moo. He is such a smart little boy!
While we were on vacation he came down with hand, foot, and mouth disease. He recovered after about 4 days but his feet look awful now. They are peeling and he complains and whines with them. Hopefully they heal soon.
Well, I know he is progressing in other areas too but honestly my brain hurts to much to think about it...
We are forever grateful to our friends and family who have walked along beside of us during this journey.... We love you all!
Amy

Another update

lots of things have been happening with Isaiah. wanted to catch everyone up to speed.

Isaiah had his allergy testing done last week. On a good note is was all clear. He tested negative for any food allergies. We are grateful for that. but on the other hand thats one more thing to cross of the list that cant be the issue.
We have started the skihi program. It is a program that is done thru the wv school for the deaf and blind in romney. They will come to the house every other week. We will working on sounds and continue signing. When she comes next week she will be doing and language screening on him. I am anxious to see where he stands.
As for signing, Isaiah is doing wonderful. I am completely amazed that he picks up so quickly. I think his signing vocabulary is between 30-35 words. That is amazing. And what he learns -- we learn! He has taught us so much in his little life! Praise God for his miracles!
Today when Ms. Stacy was here we discussed some issues with him. She believes there is some sensory delays for him. We are in the process of getting an occupational therapist to do an evaluation. We started something new called the Wilbarger Brushing Protocol. It involves brushing isaiah all over his body every two hours for two weeks. also joint compressions were added. Also some other exercises too. Alot to do but if it helps my baby one ounce it will all be worth it!
I am in t he process of scheduling another appt with the ENT. I am really pushing for them to do the ABR test. I believe there is a small hearing loss. It seems everyone is on board but the ENTs. They are the ones we need the most. I believe that God placed the right audiologist in our path this time. Please pray for the ENT to agree to do this test. It is very important. It will give us an idea of which way to proceed with treatment.

In ending, although I knew that my baby would have issues to faces this is hard. My heart breaks for him but at the same time I am forever grateful that he is as healthy as he is. I just want to know what we are faced with so that we can get him the best tratment possible.
Please pray for Dave as well. going in tomorrow for a stress test. Been carrying a lot of fluid and the wanna make sure taht he dont have another blockage.
Amy

random pictures

Isaiah's dr visit in morgantown

We went yesterday for our second opinion. Here is all the information... Some I agree with, Some I do not!

First-- He said that he agrees with the ENT in pittsburgh that the hearing test is within the normal ranges. He said that he would repeat the same hearing test. If the results were the same he would do nothing. If the results were different he would consider the ABR test. The ABR test is done under sedation but is very clear. Nothing can compromise the results. I wish they would just do it instead!

Second-- He agreed to refer him to a pediatric allergy doctor. They can only test for food allergies at this point but may provide some answers.

Third-- WVU cannot do a sleep study until age two. Guess we will wait that out a lil longer. I mean we have went 18 months without much sleep whats a few more months?

Fourth-- He believes that his clumsiness and falling are not ear related. He believes it is normal development. I DO NOT AGREE!

Fifth-- He said that he would not take out his adneoids. He said that it would present more probles with speech and eating. He suggested we deal with the sleep issues and leave adenoids alone. I am researching this information cause I don't completely agree.

Guess we will see what hearing and allergy tests say and go from there...
Amy

We are getting a second opinion

After going to pittsburgh last week, we have deceided that it would be best to get a second opinion. We go this monday.
This is crazy. As a mom, I know something isnt right. Why cant the doctor feel it too? If they did the scope test and seen his adenoiods are partially obstructing his airway then why? why wont they remove them?
I also feel there is a greater issue with his hearing then they are willing to admit. I am praying that this visit will answer a lot of questions that I have.
I am praying they will repeat his hearing test and do more and also check his adnoids too.
There is a lot of information to take in.
On top of everything, DAve leaves for school for two weeks.
Keep praying....

The Next Step

We have another appt with Ms. Stacy today. Hopefully she can give me some insight on the information we received on Tuesday. I will admit I am confused, frustrated and overwhelmed.

Why is it as parents we have to fight for every breathe for our children?
I will try to get all my thoughts together and post soon.
Amy

Isaiah enjoying a donut!